Spina Bifida Resource Network (SBRN) is a source of support, information, and provides opportunities for the Spina Bifida Community to connect on a personal level.

The ADD Resource Center offers parents, children and adults consultation, educational and coaching services, and more, including:

The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance, and inclusion of people with Down syndrome. Find resources and local support on their website. 

The Association for Children with Down Syndrome's services are designed with the person in mind. All of their activities – educational, recreational, therapeutic, social – focus on the unique characteristics and abilities of the person they are serving, with one goal - to help that person develop to their full potential. 

Contact 516.933.4700 or 914.810.2237.

Gigi's Playhouse is a community center where families gather to attend programs, lectures, and events that promote the self-esteem and self-advocacy of families touched by Down syndrome. They are an education center where weekly educational programs prepare people with Down syndrome to contribute more fully in their homes, communities and schools.